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Shawn P. Winsor Contact Information Date prepared: March 2021 20 Givins Street Toronto, Ontario M6J 2X7 (416) 992-9403 [email protected] https://www.shawnwinsor.ca Employment history 2002-present Ethicist and Health Policy Consultant Consultation: provide clinical, research, and organizational ethics guidance and problem solving support to patients, clinicians, and organizations across Canada; Education: conduct teaching sessions for healthcare facilities and medical residents throughout Canada on current subjects in clinical and organizational ethics; Policy: examples: co-developed equity and diversity policy and multi-platform health equity framework for physician members and training centres (Canadian Medical Association); team leader developing first-in-kind policy governing mosaic embryo screening and selection (Canadian Fertility and Andrology Society - TRIO Fertility); member of multidisciplinary team that developed the Ontario Decision Framework to guide health technology assessment (Ontario Health Technology Advisory Committee). 2009-2010 Director, Ethics Centre; and Ethicist Sunnybrook Health Sciences Centre, Toronto, and University of Toronto Joint Centre for Bioethics Accountabilities: Managed team of clinical ethicists at Canada’s largest single-site hospital and oldest ethics program, conducted ethics consultation, supervised post- graduate and doctoral fellows in clinical ethics, and led implementation of the Centre’s five year strategic plan (highlights include: creation of Ethics Advisory Groups in all seven of the hospital’s medical programs; establishment of regular Ethics Rounds in all seven programs; and operationalization of a permanent organizational ethics committee of senior managers, physicians, and ethicist tasked with addressing ethical issues of strategic organizational importance). 2004-2009 Lead, Regional Bioethics Service; and Ethicist (2007-09) Trillium Health Partners, Mississauga and Toronto, and University of Toronto Joint Centre for Bioethics Accountabilities: Co-developed and led Ethics Program at Trillium and consulted on development of hospital bioethics programs at Credit Valley, Southlake, and York Central; developed the Regional Bioethics Service in the Mississauga-Halton Local Health Integration Network (LHIN) to provide bioethics services and resources through a flexible and affordable funding structure to all health and community service providers there in historically underserviced areas. 1 Appointments, activities, and professional affiliations Appointments 2021-present Member, Ontario Fetal RhD Genotyping Task Force Prenatal Screening Ontario, Ministry of Health, Province of Ontario 2016-present Member, Ontario Genetics Advisory Committee Ministry of Health, Province of Ontario 2015-present Dalla Lana School of Public Health, University of Toronto - Associate Member (2015- ) - Lecturer (2015-2018) 2003-present Affiliate, Joint Centre for Bioethics, University of Toronto 2017-2019 Member, Health Professions Appeal and Review Board Ministry of Health, Province of Ontario 2013-2017 Member, Ontario Health Technology Advisory Committee Ministry of Health, Province of Ontario 2007-2015 Member, Scientific Programming Committee Canadian Fertility and Andrology Society 2007-2009 Member, Detailed Planning Action Team – Primary Care Mississauga-Halton Local Health Integration Network, Province of Ontario - Lead, Primary Care Working Grouping on Access to Care Expert/peer reviewer • Public Health Agency of Canada - Canadian Task Force on Preventive Health Care Guidelines • Canadian Agency for Drugs and Technologies in Health • Canadian Journal of Bioethics • BioéthiqueOnline • Healthcare Policy / Politiques de Santé • International Journal of Technology Assessment in Health Care Membership in professional associations • Canadian Bioethics Society • Canadian Fertility and Andrology Society • American Society for Bioethics and Humanities Education Expected defence Doctor of Philosophy (candidate) (Health Policy) In Summer 2021 McMaster University (Dept of Clinical Epidemiology & Biostatistics) Dissertation Title: Bioethical analysis and scholarship in the assessment of reproductive technologies: coherence and disjunction Supervisor: Professor Lisa Schwartz 2004 Fellowship in Clinical Ethics University of Toronto (Joint Centre for Bioethics) Rotations: • Centre for Addiction and Mental Health (Gordon DuVal) • Hospital for Sick Children (Christine Harrison) 2 • Toronto Rehabilitation Institute (Barbara Secker) • Michael Garron Hospital (Doreen Oulette) 2003 Master of Health Science (Bioethics) University of Toronto (Institute for Medical Science) 2001 Certificate in Advanced Mediation York University (Osgoode Hall), Toronto 1991 Bachelor of Arts (Honours) (English and Political Science) University of Toronto Honours Graduate scholarships 2013-2017 Vanier Canada Graduate Scholarship ($150,000) 2013-2014 Ontario Graduate Scholarship (Declined) ($15,000) 2012-2013 Ontario Graduate Scholarship ($15,000) 2012-2013 McMaster University, School of Graduate Studies, Research Scholarship ($8,000) 2011-2012 McMaster University, School of Graduate Studies, Graduate Scholarship ($8,000) Awards 2013, 2014, 2015 Faculty of Health Sciences Graduate Program Excellence Award (McMaster University) Research activities Research awards 2016-17 Publicly-Funded IVF in Ontario: A Qualitative Study of the Impact of the First Year of Implementation. Winsor, S. (PI), Laskin C. (PI) Ala-Leppilampi, K., Edney, D.R.; Petropanagos, A.; Spitzer, K. Seed Grant - Canadian Fertility and Andrology Society (CFAS), $5000 [Submitted June 2016] 2013-2017 Bioethical scholarship and frameworks to assess assisted reproductive technologies for funding: A theoretical and empirical study. Winsor, S. (PI) Vanier Canada Graduate Scholarship – Canadian Institutes of Health Research, $150,000 [Submitted September 2013] 2009-2012 Evaluating the effectiveness of hospital-based ethics programs: a pilot study to identify key benchmarks, indicators, and success. Gibson, J (PI); Faith, K.; Frolic, A.; Secker, B.; Upshur, R.; and Winsor, S. Canadian Institutes of Health Research, $98,611 [Submitted May 2008] Research in competition 2020-2027 Transforming Assisted Reproductive Health Care Technology (ART) for Canadians: Healthy IVF Babies. Librach, C. (PI); Arabi, M.; Amaran, A.; Chan, C.; Eisenberg, M.; El-Ansomy, A.; Jarvi, K.; Lee, S.; Lye, S.; Ravitsky, V.; Sun, Y.; Winsor, S.; Yee, S. New Frontier Research Fund Transformation Competition, Social Science and Humanities Research Council, Canada. $24,000,000 [Notice of Intent phase completed; Letter of Intent submitted] Research employment 2011-2014 Centre for Health Economics and Policy Analysis, McMaster University. Project leader: Mita Giacomini (Professor, Dept of Clinical Epidemiology and Biostatistics) 3 • Conducted qualitative metasyntheses on topics in chronic disease management as assigned by the Ontario Health Technology Advisory Committee, Ontario Health Research ethics service 2009-2014 Ontario Cancer Research Ethics Board, Ontario Institute for Cancer Research, Toronto (Member - five-year term) 2004-2009 Research Ethics Review Committee, Trillium Health Partners, Mississauga-Toronto (Vice-chair 2007-09; Member 2004-09) 2004 Research Ethics Board, Hospital for Sick Children, Toronto (Fellowship) Research Ethics Board, Toronto Rehabilitation Institute, Toronto (Fellowship) Research Ethics Board, Toronto East General Hospital, Toronto (Fellowship) 2002-2004 Research Ethics Board, Centre for Addiction and Mental Health (CAMH), Toronto (Community Member) Publications Peer-reviewed Cohen, SR.; Winsor, S. (2020) Good Intentions: An Examination of the Legal and Ethical Harms Caused to Donor Conceived People and Ova Donors in Canada by its Criminalization of Compensated Gamete Donation, and Proposed Remedies. Health Law in Canada Journal, February 2020, 40(3), 82-95. Winsor, S., Ala-Leppilampi, K., Spitzer, K., Edney, DR., Petropanagos, A., Cadesky, KI., Casper, R., & Laskin, CA. (2019). The Affordability and Accessibility of Ontario's Publicly Funded IVF Program: A Survey of Patients. Journal of Obstetrics and Gynaecology Canada, 42(5), 568-575. Krahn, M., Miller, F., Bayoumi, A., Brooker, AS., Wagner F., Winsor, S., Giacomini, M., Goeree, R., Schünemann, H., van der Velde, G., Peterson, S., Sikich, N., & Dhalla, I. (2018). Development of the Ontario Decision Framework: A Values Based Framework for Health Technology Assessment. International Journal of Technology Assessment in Health Care. 34(3), 290-299. Vanstone, M., Yacoub, K., Winsor, S., Giacomini, M., & Nisker, J. (2015). What is "NIPT"? Divergent Characterizations of Noninvasive Prenatal Testing. American Journal of Bioethics Empirical Bioethics. 6(1), 54-67. Winsor, S., Bensimon, CM., Sibbald, R., Anstey, K., Chidwick, P., Coughlin, K., Cox, P., Fowler, R., Godkin, D., Greenberg, RA., & Shaul, RZ. (2014). Identifying Prioritization Criteria to Supplement Critical Care Triage Protocols for the Allocation of Ventilators during a Pandemic Influenza. Healthcare Quarterly (Toronto, Ont.), 17(2), 44-51. Giacomini, M., Winsor, S., & Abelson J. (2013). Ethics in Health Technology Assessment: Understanding Health Technologies as Policies. Healthcare Management Forum, 26(2), 72-6. Winsor, S. & Giacomini, M. (2012). Thinking Outside the Black Box: What Policy Theory Can Offer Healthcare Ethicists. American Journal of Bioethics, 12(11), 16-18. Winsor, S., Dale, S., & Laskin, CA. (2008). Adolescence to Adulthood: Lessons Learned in an Ethics Committee's Four-Year Journey to Support Fair and Effective Organizational and Clinical Decision-Making at a Private ART Clinic. Fertility and Sterility, 90, S415. 4 Dale, S., Winsor, S., Zatylny, R., Clark, C, Levitan, S., & Laskin, CA. (2008). Factors Influencing the Development of a Protocol for Identifying Previously-Anonymous Egg Donors to the Recipients of Their Donation. Fertility and Sterility, 90, S418. Franz, S.D., Winsor, S., Clark, C., Cadesky, KI, Laskin, CA., & Meriano, J. (2005). Factors Influencing the Establishment of Embryo Transfer Guidelines at a Private Canadian Fertility Clinic. Fertility and Sterility, 84, S244. Technical reports Winsor, S.; Smith, A., Vanstone, M.; Giacomini, M.; Brundisini, F.; Dejean, D. (2013). Experiences of Patient-Centredness with Specialized Community-Based Care (SCBC): A Systematic Review and Qualitative Meta-Synthesis. Ont Health Technol Assess Ser [Internet]. 2013 September; 13(17):1-34. Available from: http://www.hqontario.ca/Portals/0/Documents/eds/ohtas/full-report-qualitative-patients- experience-patient-centredness-130906-en.pdf Brundisini, F.; Giacomini, M.; DeJean, D. Vanstone, M.; Winsor, S.; Smith, A. (2013). Chronic Disease Patients’ Experiences with Accessing Health Care in Rural and Remote Areas: A Systematic Review and Qualitative Meta-Synthesis. Ont Health Technol Assess Ser [Internet]. 2013 September; 13(15):1-37. Available from: http://www.hqontario.ca/Portals/0/Documents/eds/ohtas/full-report-qualitative-cd-patients- experience-accessing-health-care-130906-en.pdf Vanstone, M.; Giacomini, M.; Smith, A.; Brundisini, F.; DeJean, D.; Winsor, S. (2013). How Diet Modification Challenges are Magnified in Vulnerable or Marginalized People with Diabetes and Heart Disease: A Systematic Review and Qualitative Meta-Synthesis. Ont Health Technol Assess Ser [Internet]. 2013 September; 13(14):1-40. Available from: http://www.hqontario.ca/Portals/0/Documents/eds/ohtas/full-report-qualitative-diet- modification-130906-en.pdf Degani, N.; Brener, S.; Chambers, A.; Franek, J.; Kaulback K.; McMartin, K.; Nikitovic, M.; Levin, L.; Vanstone, M.; Giacomini, M.; DeJean, D,.; Brundisini, F.; Winsor, S.; Smith, A.; Chandra, K.; Masucci, L.; Goeree, R.; Ieraci, L.; Chan, B.; Bermingham, S.; Krahn, M. (2013). Optimizing Chronic Disease Management in the Community (outpatient) Setting (OCDM): An Evidentiary Framework. Ont Health Technol Assess Ser [Internet]. 2013 January; 13(3):1-78. Available from: http://www.hqontario.ca/Portals/0/Documents/eds/ohtas/evidentiary-framework-ocdm-130906- en.pdf Winsor, S., Bensimon CM. (2010). Supplementary Criteria for Critical Care Triage (with Pandemic Flu Supplementary Triage Criteria Taskforce). Submitted to: Pandemic Flu Planning subcommittee of the Toronto Academic Health Sciences Network, and to the Joint Centre for Bioethics, University of Toronto, 15 January 2010. Non-peer reviewed Winsor, S. (2011). “The Process and Challenges of Identifying a Supplementary Set of Critical Care Triage Criteria for Pandemic Influenza.” JCB Voice 16:6 (Feb 2011):12-15. Winsor, S. (2011). “Epigenetics and the ART Patient.” CFAS Communiqué 2008: 6. Winsor, S. and Jones, D. (2003). “Ethical Decision-Making in Times of Crisis.” The College of Nurses of Ontario Standard (formerly, Communiqué) 28:3 (September 2003): 8-9. Winsor, S. (2001). “The Changing Face of Opiate Use.” Rev. of Dark Paradise: A History of Opiate Addiction in America by David T. Courtwright. Journal of Addiction and Mental Health 4:6 (November-December 2001): 14-15. 5 Winsor, S. (2000). “Take Two and Call God in the Morning.” Rev. of Pills-A-Go-Go: A Fiendish Investigation into Pill Marketing, Art, History, & Consumption by Jim Hogshire. Journal of Addiction and Mental Health 3:4 (July-August 2000): 15-16. Blog commentary Winsor, S. (2017). “The Impact of Ontario’s Publicly Funded IVF.” Impact Ethics (September 21, 2017) https://impactethics.ca/2017/09/21/the-impact-of-ontarios-publicly-funded-ivf/ Teaching and mentorship Course Director 2012-2016 PHL384HS, Ethics, Genetics, and Reproduction Department of Philosophy, University of Toronto 2006-2012 CHL3008Y, Applied Learning in Bioethics (Practicum for MHSc) Institute of Medical Science, University of Toronto 2009-2011 INFON-332, Legal and Ethical Issues in Reproductive Technologies, Unit 2 (Tough Cases) and Unit 4 (Durable Problems and New Wrinkles) Continuing Education Dept, University of St Michael’s College, University of Toronto Guest Lectures 2019 “The Ethical Organization” HLTH401, Health Leadership, Health Program, St Francis Xavier University, November 5, 2019 2018 “Prenatal Screening and Diagnosis,” PHL384HS, Ethics, Genetics, and Reproduction, Department of Philosophy, University of Toronto, February 13, 2018 2014 “Informed Consent and Facilitating Informed Decision Making,” MMG1222Y, Molecular and Medical Genetics, University of Toronto, October 7, 2014 2012 “Challenges in Consent and Capacity: Cases & Law,” MMG1222Y, Molecular and Medical Genetics, University of Toronto, October 2, 2012 2011 “Challenges in Consent and Capacity: Cases & Law,” MMG1222Y, Molecular and Medical Genetics, University of Toronto, September 30, 2011 “Ethics – Assisted Reproductive and Preimplantation/Prenatal Testing”, MEDG545Y, Current Topics in Medical Genetics, Hospital for Sick Children, University of Toronto, June 16, 2011 “Advanced Clinical Ethics Program Development: Hub and Spoke Model”, CHL3004Y, Ethics Committees and Consultation, University of Toronto, March 3, 2011 “Fundamentals of Contemporary Health Care Ethics, HMB406H1S, Health Care Ethics, Department of Human Biology, University of Toronto, February 25, 2011 2010 “Priority-Setting during a Pandemic Response: Supplementary Triage Criteria in Critical Care,” PHL2146Y, Topics in Bioethics, Department of Philosophy, University of Toronto, December 3, 2010 “Challenges in Consent and Capacity: Cases & Law,” MMG1222Y, Molecular and Medical Genetics, University of Toronto, November 30, 2010 6 “Ethics Cases in Reproductive Healthcare and Technology,” MMG1222Y, Molecular and Medical Genetics, University of Toronto, Oct 19, 2010 “Fundamentals of Contemporary Health Care Ethics, HMB406H1S, Health Care Ethics, Department of Human Biology, University of Toronto, February 23, 2010 2009 “Challenges in Consent and Capacity: Cases & Law,” MMG1222Y, Molecular and Medical Genetics, University of Toronto, November 10, 2009 “Ethical Issues in Reproductive Healthcare and Technology from the Clinic to the Courts,” MMG1222Y, Molecular and Medical Genetics, University of Toronto, September 15, 2009 2008 “Ethical issues in Use of Assisted Reproductive Technologies,” PHL440H, Clinical Bioethics, Department of Philosophy, University of Toronto, March 4, 2008 2007 “A Year in the Life of an Ethicist,” CHL3004Y, Ethics Committees and Consultations, Institute of Medical Science, University of Toronto, February 2, 2007 “The Hub and Spoke Model: Lessons Learned,” CHL3004Y, Ethics Committees and Consultations, Institute of Medical Science, University of Toronto, January 11, 2007 2006 “Integrating Clinical Ethics: The Hub and Spoke Strategy,” CHL3004Y Ethics Committees and Consultations, Institute of Medical Science, University of Toronto February 23, 2006 Post-Graduate Fellowship Supervision 2004-10 Rotation Supervisor (3-month rotations), Fellowship in Clinical and Organizational Ethics, Joint Centre for Bioethics University of Toronto: Rebecca Greenberg, RN, PhD (2008-09) Tom Foreman, MA, DHCE (2008-09) Hannah Kaufman, MSW, MHSc (2007-08) Sally Bean, JD, MA (2007-08) Rex Roman, PhD (2006-07) Kyle Anstey, PhD (2005-06) (6-month rotation) Alison Thompson, PhD (2004-05) Eoin Connolly, MA (2004-05) Presentations and invited papers Papers accepted at meetings and symposia (refereed) 2021 Winsor, S., Bensimon, CM, Jobse, B., Van Slingerland, KJ., Dearham, A. “Development of an Equity and Diversity in Medicine Policy Platform.” Annual Meeting of the Canadian Association of Health Services and Policy Research (CAHSPR), May 19-21 [Virtual] Winsor, S., Bensimon CM, Dearham, A., Chisholm, A., Banasiak, K. “Development of Health Equity-Informed Decision Tools.” Annual Meeting of the Canadian Association of Health Services and Policy Research (CAHSPR), May 19-21 [Virtual] 2o2o Winsor, S. Lewis, A., Cohen, S. “Thinking Locally, Acting Globally: The Ethical and Legal Challenges of Proposed Global Egg Donor Recruitment Programs and What Is Required to Make These Programs Morally Permissible.” Annual Meeting of the Canadian Bioethics Society (CBS), Toronto, ON, June 3 [Cancelled due to Covid 19 restrictions; Abstract posted] Winsor, S., Cohen, S. “Good Intentions: An Examination of the Legal and Ethical Harms Caused to Donor-Conceived People and Ova Donors in Canada by its Criminalization of 7 Compensated Gamete Donation, and Proposed Remedies.” Annual Meeting of the Canadian Association of Health Services and Policy Research (CAHSPR), Saskatoon, SK, May 26 [Cancelled due to Covid 19 restrictions; Abstract posted] Lewis, A. Winsor, S., Cohen, S. “Thinking Locally, Acting Globally: The Ethical and Legal Challenges of Proposed Global Egg Donor Recruitment Programs and What Is Required to Make These Programs Morally Permissible.” Reproductive Ethics Conference, Alden March Bioethics Institute, Albany, NY, March 20 [Cancelled due to Covid 19 restrictions] 2019 Winsor, S., Schwartz, L .,Vanstone, M., Abelson, J. “A Comparative Analysis of Ethical Issues Identified in Health Technology Assessments and Bioethics Scholarship About Select Assisted Reproductive Technologies: 1978-2017.” Annual Meeting of the Canadian Fertility and Andrology Society (CBS), Ottawa, ON, September 23 Winsor, S., Schwartz, L. “High Quality Ethics Evaluation in Health Technology Assessment: What It Is and How to Conduct It.” Annual Meeting of the Canadian Bioethics Society (CBS), Banff, AB, May 22 [Workshop] Winsor, S., Vanstone, M., Abelson, J., Schwartz, L. “A Comprehensive Descriptive Account of Ethical Issues Identified in the Bioethics Scholarship About Select Assisted Reproductive Technologies: 1978-2017.” Annual Meeting of the Canadian Bioethics Society (CBS), Banff, AB, May 25 Winsor, S.; Ala-Lemppi, K.; Spitzer, K.; Roth Edney, D.; Petropanagos, A.; Laskin, A.; Cadesky, K.; Caspar, R.; Laskin, C. “Publicly-Funded IVF in Ontario: A Study of the Impact on Patients and ART Clinicians of the First Year of Implementation.” Annual Meeting of the Canadian Association of Health Services and Policy Research (CAHSPR), Halifax, NS, May 31 2018 Winsor, S.; Ala-Lemppi, K.; Spitzer, K.; Roth Edney, D.; Petropanagos, A.; Laskin, A.; Cadesky, K.; Caspar, R.; Laskin, C. “Publicly-Funded IVF in Ontario: A Mixed-Method Study of the Impact on Patients of the First Year of Implementation.” Annual Meeting of the Canadian Fertility and Andrology Society (CFAS), Montreal City, PQ, September 13 [Poster] 2017 “What social and ethical issues are identified in the health technology assessments of select reproductive technologies.” Annual Meeting of the Canadian Bioethics Society (CBS), Montreal, PQ, May 25 “A systematic review of ethical issues in the health technology assessment of ovarian stimulation and ovulation induction: convergence and disjuncture.” Canadian Agency for Drugs and Technology in Health Symposium (CADTH), Ottawa, ON, April 24 2015 Winsor, S., Clark, C. “Medico-ethical considerations affecting access to assisted reproductive technologies (ART): Results from ‘The Gatekeeper Survey’ of Canadian ART professionals.” Brocher Symposium - Between Policy and Practice: Interdisciplinary Perspectives on Assisted Reproductive Technologies and Equitable Access to Health Care, Hermance, Switzerland, July 6 “Identifying Prioritization Criteria to Supplement Critical Care Triage Protocols for the Allocation of Ventilators during a Pandemic Influenza.” Annual Meeting of the Canadian Bioethics Society (CBS), Winnipeg, MB, May 27 Winsor, S., Clark, C. “Ethical considerations affecting access to Assisted Reproductive Technologies (ART): Results from ‘The Gatekeeper Survey’.” New Frontiers in Health Policy Conference, McMaster University, Hamilton, ON, March 9 2014 Winsor, S., Clark, C. “Ethical considerations affecting access to ART in Canada: Results from ‘The Gatekeeper Survey’.” Annual Meeting of the Canadian Fertility and Andrology Society 8 (CFAS), Quebec City, PQ, September 12 Krahn M., Miller F., Bayoumi, A., Goeree, R., Winsor, S., Schunemann H., Petersen, S. “Developing the Ontario Decision Framework: Basing Decisions on Clinical Evidence, Opportunity Cost, and Social Values.” Society for Medical Decision Making – 15th Biennial European Meeting Antwerp, Belgium, June 10 2013 Vanstone, M., Giacomini, M., Smith, A., Brundisini, F., DeJean, D., Winsor, S. “Challenges faced by heart disease and diabetes patients as they modify their diets: The influence of social vulnerability.” Annual Meeting of the Canadian Association of Health Services and Policy Research (CAHSPR). Vancouver, BC, May 30 Vanstone, M., Giacomini, M., DeJean, D., Brundisini, F., Winsor, S., Smith, A. “A new conceptual framework and methodology for systematically synthesizing qualitative research to address social values in health technology policy: An Analytical Methodology.” Annual Meeting of the Canadian Association of Health Services and Policy Research (CAHSPR). Vancouver, BC, May 30 [Poster] Vanstone, M., Giacomini, M., Smith, A., Brundisini, F., DeJean, D., Winsor, S. “Diet modification challenges experienced by vulnerable and non-vulnerable diabetes patients: A systematic review and qualitative meta-synthesis.” Clinical Epidemiology & Biostatistics Research Day. McMaster University, Hamilton, ON, March 22 2011 Secker, B., Daou, J., Rodrigues, K. (presenters) on behalf of Winsor, S., Anstey, K., Marcri, M., Bruni, B., Bean, S., McDonald, M., Secker, B. for the University of Toronto Joint Centre for Bioethics CORE Network Ethics Consult Documentation Task Force, "What Counts as Best Practice in Documenting Ethics Consultations?" Annual Meeting of the Canadian Bioethics Society Conference (CBS). Saint John, NB, June 11 2010 “Ethical and Legal Issues in the Use of Fertility Protection Options for Female Cancer Patients,” Annual Meeting of the Canadian Bioethics Society (CBS), Kelowna, BC, June 10 2009 “Ethical and Legal Issues in the Harvesting and Implantation of Oocytes and Ovarian Tissue in Cancer Patients,” Annual Meeting of the Canadian Fertility and Andrology Society (CFAS), Montreal, PQ, November 20 [Faculty lecture] “Mississauga-Halton Regional Ethics Service: An Alternative Delivery Model,” Conference on Ethics in Healthcare: Not a Matter of Choice, Accreditation Canada, Toronto, ON, October 1-2 [Poster] 2008 “Growing Pains: The First Four Years of an ART Ethics Committee,” Annual Meeting of the Canadian Bioethics Society (CBS), St John’s, NFLD, June 18-21 “Rethinking Alternative Level of Care Patient Reform through Efficiency & Equity Analysis,” Annual Meeting of the Canadian Bioethics Society (CBS), St John’s, NF, June 18-21 2007 “Why Am I Doing What I’m Doing When I’m Doing It? Creating a Model for Identifying Core Values at a Private ART Clinic,” Annual Meeting of the Canadian Fertility and Andrology Society (CFAS), Halifax, NS, September 26-29 “Ethics Programs in the Era of LHINs: Planning for Success” and “Enhancing HealthCare Providers Core Competencies in Ethics,” Annual Meeting of the Canadian Bioethics Society (CBS), Toronto, ON, May 31-June 3 9 2006 “Factors Influencing the Establishment of Embryo Transfer Guidelines at a Private Canadian Fertility Clinic,” Annual Meeting of the American Society for Bioethics and the Humanities (ASBH), Denver, CO, October 24-27 “A Year in the Life of an ART Ethics Committee,” Annual Meeting of the Canadian Fertility and Andrology Society (CFAS), Ottawa, ON, October 21-24 [Poster] 2005 “Make It a Double: Challenges in Creating an Embryo Transfer Policy,” Annual Meeting of the Canadian Bioethics Society (CBS), Halifax, NS, October 20-23 “Factors Influencing the Establishment of Embryo Transfer Guidelines at a Private Canadian Fertility Clinic,” Joint Meeting of the American Society of Reproductive Medicine and the Canadian Fertility and Andrology Society (ASRM-CFAS), Montreal, PQ, October 17-19 [Poster] 2004 “Ethical Issues in Private ART,” Annual Meeting of the Canadian Bioethics Society (CBS), Calgary, AB, October 28-31 “Establishing an Ethics Service in an ART Clinic: Why and How,” Annual Meeting of the Canadian Fertility and Andrology Society (CFAS), Jasper, AB, November 24-28 [Faculty workshop] 2003 “Old Methods, New Thinking: Mediation and End-of-Life Decision-Making,” ASBH and the Canadian Nurses Association Pre-Conference: Nursing Ethics - Cross-Border Challenges and Leadership, Montreal, PQ, October 11-14 Invited papers and presentations 2o21 Canadian Fertility and Andrology Society (CFAS) Virtual Special Interest Group Summit. Legal and Ethical Issues in Third Party Embryo Donation. February 24. [Panel] 2020 “The World Would Be Better if Research Could Be Conducted on Embryos Beyond 14 Days.” Fifth Annual Stem Cell Conference: “ReGen20: The Stem Cell Project”. Toronto, ON. February 29. [Debate: opposing view] 2019 “Ethics in HTA”. Genetics HTA Workshop. Health Quality Ontario-CADTH. Toronto, ON, June 10. [Panel] 2018 “The Gatekeeper’s Dilemma: Transfer of Mosaic Embryos.” Annual Meeting of the Canadian Fertility and Andrology Society, Montreal City, PQ, September 15. [Panel] “Balancing Adults’ Access to ART Against Childrens’ Best Interests”, Current and Emerging Issues in Fertility Law, Osgoode Hall Law School, York University, Toronto, ON. February 5. “Mosaicism and Embryo Transfer: Ethics and Policy Considerations.” To Transfer or Not to Transfer – Consequences and Risks Surrounding Mosaic Embryos, Mosaicism Gatekeepers Conference - Canadian Fertility and Andrology Society (CFAS), Toronto. ON. January 26. 2017 “Ethical Issues Identified in the Health Technology Assessments of Assisted Reproductive Technologies: What Do Non-Ethicists See and Why Does it Matter?” Bioethics Seminar, Joint Centre for Bioethics, University of Toronto, November 8. “’Parent’ in Law, ‘Parent’ in Practice: Are They Different? Does It Matter?” Ethics-Law and Counselling Joint Session, Annual Meeting of the Canadian Fertility and Andrology Society, Vancouver, BC, September 14. “Ontario IVF Funding Program.” Gatekeepers’ Dilemma 2.0 Symposium, Canadian Fertility and 10 Andrology Society, Toronto, ON. June 23. [Panel] Winsor, S., Clark, C “The Gatekeeper’s Dilemma: Balancing Access to ART Against Best Interests.” Canadian Bar Association Health Law Summit, Niagara-on-the-Lake, ON. May 5. “IVF Wait List Management.” Canadian Fertility and Andrology Society Regional Nursing Symposium, Toronto, ON. April 28. [Panel] 2016 “Ethical and Social Aspects of Epigenetics.” The Impact of the Periconceptual Environment on the Health of the Future Child, Canadian Fertility and Andrology Society Symposia, Toronto, ON. May 27. 2014 “Ethics of Practice and Fertility Law”, Current and Emerging Issues in Fertilty Law – Continuing Legal Education Program, Osgoode Hall Law School, York University, Toronto, ON, February 24. 2013 “Under what conditions might the use of an ethics checklist in HTA be appropriate or inappropriate?” Workshop on Methodology in Ethics for Health Technology Assessment: Assessing the Need for and Quality of Ethics Analyses in HTA, Institute of Health Economics, Edmonton, AB, October 18-19. “Donor Conception: Current State of the Ethics and Law,” Workshop on ‘Donor Conception: Lessons for Clinicians, Families, Policy Makers and Researchers’, University of Montreal, Montreal, PQ, June 20. “Surrogacy in Canada: It’s Legal and Ethical… or Is It?” 37 th Annual Day in Perinatology Conference, McMaster University, Hamilton, ON, May 15. Vanstone, M., Giacomini, M., DeJean, D., Brundisini, F., Winsor, S., Smith, A. "Systematically Synthesizing Qualitative Research to Address Social Values in Health Technology Assessment". CHEPA Seminar Series. McMaster University, Hamilton, ON, April 24. Vanstone, M., Giacomini, M.; DeJean, M.; Brundisini, F.; Winsor, S.; Smith, A., “Optimizing Chronic Disease Management: Systematic Reviews of Empirical Qualitative Research,” Ontario Health Technology Assessment Committee, Toronto, ON, January 25. 2012 Vanstone, M., Giacomini, M., DeJean, D., Brundisini, F., Smith, A., Winsor, S., “Systematic Reviews of Qualitative Research Evidence on Patient Experiences of Chronic Conditions”, Ontario College of Family Physicians, Toronto, ON, December 21. “Experiences of Patient-Centredness with Specialized Community Based Care (SCBC): A Systematic Review of Qualitative Research Evidence” (with Smith, A.; Giacomini, M.; Brundisini, F.; DeJean, D.), Optimizing Chronic Disease Management (OCDM) Expert Panel, Health Quality Ontario (HQO), Toronto, ON, November 8. Vanstone, M.,Giacomini, M.; DeJean, M.; Brundisini, F.; Winsor, S.; Smith, A., “Introduction: Systematic Reviews of Empirical Qualitative Research on Chronic Condition Patient Experiences and Selected Challenges,” Optimizing Chronic Disease Management (OCDM) Expert Panel, Health Quality Ontario (HQO), Toronto, ON, November 8. Brundisini, F., Giacomini, M.; DeJean, D. Vanstone, M.; Winsor, S.; Smith, A., “Chronic Disease Patients’ Experiences with Accessing Health Care in Rural and Remote Areas: A Systematic Review and Qualitative Meta-Synthesis.” Optimizing Chronic Disease Management (OCDM) Expert Panel, Health Quality Ontario (HQO), Toronto, ON, November 8. 11 "Should twins be considered an undesirable outcome in IVF," Annual Meeting of the Canadian Fertility and Andrology Society, Ottawa, ON, September 9. “Intimacy and Boundaries in the Doctor-Patient Relationship: The Ethics and Law”, Academic Half Day for Family Medicine Residents, Trillium Health Centre, Mississauga, ON, August 29 “Ethical issues at the beginning of life,” Real Life Ethical Issues Symposium, Kingsway Lambton United Church, Toronto, ON, May 7. 2011 “The Wild West of Medicine or a Brave New World: Using Technology to Assist Reproductive Health and the Ethical Issues This Raises”, Bioethics Interest Group Rounds, Hamilton Health Sciences Centre, Hamilton, ON, December 14. “Intimacy and Boundaries in the Doctor-Patient Relationship: The Ethics and Law”, Academic Half Day for Family Medicine Residents, Trillium Health Centre, Mississauga, ON, April 6. 2010 “Supplementary Critical Care Triage for a Pandemic” (with Neil Lazar, MD), Critical Care Medicine Bioethics Seminar, St Michael’s Hospital, Toronto, ON, December 21. “Bioethical and Psychosocial Issues Involved in Counseling Couples Regarding Risks Associated with Subfertility/Assisted Reproductive Technologies”, Organization for the Study of Sex Differences, Ann Arbor, MI, June 3. “Clinical Ethics Consultation: Studying its Impact on Participants,” OHA Conference on Ethics in Healthcare, Toronto, ON, January 15. 2009 “The Wild West of Medicine or a Brave New World: The Use of Technology to Assist Reproductive Health and the Ethical Issues It Raises,” Ethics Day: Ethics and Technology, Trillium Health Centre, Mississauga, ON, December 3. [Keynote speaker] “Critical Care Tertiary Triage” (with Neil Lazar, MD), Critical Care Medicine Bioethics Seminar, St Michael’s Hospital, Toronto, ON, October 20. “Ethics for Community Providers” (presenter and developer of full day workshop), Service Resolution Peel Forum, Mississauga, ON, April 22. “Hospital-Based Ethics Programs in the LHIN Era: Survive or Thrive?,” Bioethics Seminar Series, Joint Centre for Bioethics, University of Toronto, Toronto, ON, January 15. 2008 “Quality End-of-Life Care,” Family Practice Rounds, Credit Valley Hospital, Mississauga, ON, December 4. “Ethics and the Infertile Patient,” Association of Perinatal Naturopathic Doctors Annual Perinatal Symposium: ‘Seasons of Life’, Toronto, ON, September 27. “From ‘Ick’ to Ethics: ReThinking Tough Decisions in ART,” Serono International Foundation Symposium on Ethics in Assisted Reproduction: ‘Just Because We Can…,’ Toronto, ON, May 29. [Keynote speaker] “The Ethics of Efficiency: Rethinking Alternative Level of Care (ALC) Patients,” Clinical, Organizational and Research Ethics (CORE) Network Rounds, Joint Centre for Bioethics, University of Toronto, March 19. “Human Rights Advocacy: Definitions and Limits,” Social Work Professionals Conference, Mississauga-Halton LHIN, March 6. 12 2007 “Public v Private: Issues in Accessing Expensive New Cancer Therapies in Ontario,” Regional Oncology Clinical Day, Mississauga-Halton Local Health Integration Network, October 26. “The Ethics of Research on Human Subjects: A Sometimes Shocking, but Ultimately Illuminating History,” Brown Bag Research Ethics Rounds, Centre for Addiction and Mental Health, Toronto, ON, October 25. “The Case of Ms K,” Clinical, Organizational and Research Ethics (CORE) Network Rounds, Joint Centre for Bioethics, University of Toronto, Toronto, ON, March 27. “The Case of J” (with P Hood-Macnicol), Clinical, Organizational and Research Ethics (CORE) Network Rounds, Joint Centre for Bioethics, University of Toronto, Toronto, ON, January 17. “Ethics in a Community Setting: An Overview of Trillium’s Ethics Program.” Ethics Committee, Credit Valley Hospital, Mississauga, ON, January 15. 2006 “Hub and Spoke and Lessons Learned in Creating an Ethics Program,” Ethics Committee, Lakehead University School of Medicine, Thunder Bay, ON, November 15. “Ethics and the Healthcare Executive,” Clinical Ethics Group Rounds, Joint Centre for Bioethics, University of Toronto, Toronto, ON, November 8. “Round Peg: Organizational Ethics and Institutional Leadership,” Clinical Ethics Group Rounds, Joint Centre for Bioethics, University of Toronto, Toronto, ON, June 21. “Having Kids & HIV”- Part II: “Fertility Treatment for Patients with HIV: Clinical, Legal and Ethical Considerations,” ISIS Regional Fertility Centre, June 1. [Panel] “Conflict of Interest: Managing the Risk,” Ontario Hospital Association Conference for Administrative Professionals, Toronto, ON, April 27. [Keynote speaker] “Resource Allocation: Frameworks and Tools that Work,” Regional Bioethics Group (RBG), Hamilton, ON, January 20. “Starting an Ethics Program: First Steps,” Southlake Regional Health Centre, Newmarket ON, January 12. 2005 “Old Methods, New Thinking: Mediation and End of Life Decision-Making.” Clinical Ethics Group Rounds, Joint Centre for Bioethics, University of Toronto, Toronto, ON, June 29. “The Trouble with Empathy,” Regional Bioethics Group Rounds, Hamilton, ON, June 6. “Ethics and Assisted Reproductive Technologies (ART): Issues and Strategies,” Women’s Health Rounds, Sunnybrook & Women’s Health Science Centre, Toronto, ON, May 27. “Conflict of Interest: What Can Be Done?,” Bioethics Seminar Series, Joint Centre for Bioethics, University of Toronto, Toronto, ON, May 18. “Priority Setting and Resource Allocation for Drug Funding: Creating a Sustainable Process,” Regional Oncology Systemic Therapies Advisory Committee (ROSTAC), Mississauga-Halton Local Health Integration Network, May 4. “Ethics and ART – Theory and Practice,” Guest Rounds, ISIS Regional Fertility Centre, Mississauga, ON, March 10. 13 Moderated and/or programmed conference sessions and public lectures 2018 To Transfer or Not to Transfer – Consequences and Risks Surrounding Mosaic Embryos (Programmer), Mosaicism Gatekeepers Conference - Canadian Fertility and Andrology Society (CFAS), Toronto. ON. January 26. 2015 Ethics and Law Session (moderator and programmer), Annual Meeting of the Canadian Fertility and Andrology Society (CFAS), Halifax, NS, October 2. Panel Presentation: Women as Patients, Not Spare Parts: Examining the Relationship between the Physician and Women Egg Providers, Vanessa Gruben, LLM: Are the Risks of Extending the Range of Fertility Problems Treatable by IVF Outweighing the Benefits? Esme Kamphuis, MD; The Embryo Bank Dilemma, Craig Sweet, MD. 2014 Ethics and Law Session (moderator and programmer), Annual Meeting of the Canadian Fertility and Andrology Society (CFAS), Quebec City, PQ, September 13. Panel Discussion: Patients’ Decision-Making Regarding Disposition of Frozen Embryos: Francoise Baylis, PhD; Janet Tafekman, PhD; Marie-Claude Leveille, PhD; Arthur Leader, MD; Vanessa Gruben, LLM. 2013 “Opening Remarks and Introduction,” (moderator, and chair of Organizing Committee), Canadian Fertility and Andrology Society Ethics and Law Symposium: Gatekeepers Dilemma – Access to Assisted Reproductive Technology, Toronto, ON, May 9. 2012 “Who lives and who dies: Will social media decide”, presented by Julie Belluz, (moderator) 2012 Annual Hart House Hancock Lecture, Toronto, ON, October 31 Ethics and Law Session (moderator and programmer), Annual Meeting of the Canadian Fertility and Andrology Society (CFAS), Toronto, ON, September 8. Panel presentations: Theme: Ethics, Law, and ‘Healthy’ Babies: Legal and Ethical Implications of Prenatal Genetic Testing, Bartha Maria Knoppers, PhD; “Healthy”, “Disabled”: What Do These Terms Mean?, Gregor Wolbring, PhD; Knock Knock, Who’s There? The RCMP Investigation into ART and Its Consequences on the Legal and Medical Industry, Cindy Wasser, LLB. 2011 Ethics and Law Session (moderator and programmer), Annual Meeting of the Canadian Fertility and Andrology Society (CFAS), Toronto, ON, September 22. Panel presentations: Egg Donation: Cross Border Perspectives, Robert Stillman, MD; The Human Egg Trade, Alison Motluk, MSc; Eggsploitation, Jennifer Lahl, RN, MA; Regulating Assisted Reproduction in Canada, Erin Nelson, JSD, Controlled Activities in Quebec: Principles and Practice, Tibor Hollander, BCL. 2010 Ethics and Law Session (moderator and programmer), Annual Meeting of the CFAS, Vancouver, BC, October 1. Panel presentations: Ethics and AHR in Canada: Current State, Françoise Baylis, PhD; Supreme Court Decision re Attorney General of Canada v. Attorney General of Québec, Bernard Dickens, LLB, PhD; Anonymous Sperm Donation, Barry Stevens; Legal and Ethical Challenges of Predictive Genetic Testing, Trudo Lemmens, LLM, DCL. 2008 Serono International Foundation Symposium on Ethics in Assisted Reproduction: ‘Just Because We Can…,’ (Programmer), Toronto, ON, May 29. 2009 Critical Care Triage for H1N1: A Symposium on Emerging Ethical Issues: A Panel Discussion” (moderator), Joint Centre for Bioethics, Toronto, ON, November 25. Ethics and Law Session (moderator and programmer), Annual Meeting of the CFAS, Montreal, PQ, November 20. 14 Media and Public Education Activities 2020 “IVF was my last hope to have a baby. All Canadians deserve that hope.” Interviewee, Globe and Mail, author: Melissa Stasiuk, February 15 https://www.theglobeandmail.com/opinion/article- ivf-was-my-last-hope-to-have-a-baby-all-canadians-deserve-that-hope/ 2019 “How public funding has changed IVF in Ontario”, Interviewee, Healthy Debate, authors: D Izenburg, F Buchanan, N Iroanyah, February 21 https://healthydebate.ca/2019/02/topic/funded-ivf-ontario#comment-3058615 2018 “The ethics and law around surrogacy in Canada”, Interviewee, Blue Sky (host Garth Materie), CBC Radio 1, November 28 2017 “Third party reproduction”, Interviewee, CBC2 Ideas, radio documentary (Producer Moira Donovan), January 25 2014 “Ethicality of a Calgary fertility clinic’s decision to restrict its patients’ use of sperm, eggs, or embryos from donors who do not martch their ethnicity,” Interviewee, CTV Express News (host Todd van der Heyden), July 29. 2012 “Three parent babies: Donor DNA improves baby health,” Interviewee, CTV Express News (hosts Dan Matheson and Jacqueline Milczarek), September 18. 2009 “Queue-jumping for H1N1 Vaccines,” Interviewee, Radio Station CHQR AM - Calgary Today Show (host Mike Blanchard), November 6. “Assisted human reproduction,” Interviewee, Fairchild TV – Timeline News Magazine program (host Alice Ngan), March 17. 2008 “Facing Mars. Would You Survive the Journey?,” videotaped speaker, Special Exhibit: Facing Mars, Ontario Science Centre, Toronto, ON, May 2008 – October 2012 (North American exhibit timeline). https://www.youtube.com/watch?v=jGONr3bp6Hc) 2007 “The Race to Mars: Should We Go?”, Panelist, Café Scientifique, May 19 (http://www.youtube.com/watch?v=dQZVH1I-gqs) 2005 “Should Smokers Get Healthcare?,” Panelist, Discovery Channel – Medical Hot Seat program, November 17. 2004 “Infertility,” Panelist, TVO – 2nd Opinion program, March 15. Committee involvement Health Care Organizations 2002-present Ethics Committee, TRIO (formerly LifeQuest Centre for Reproductive Medicine), Toronto (Chair) 2009-2010 Forum of Ethics Advisory Group Leads, Sunnybrook Health Sciences Centre, Toronto (Chair) Ethics Strategic Advisory Group, Sunnybrook Health Sciences Centre, Toronto (Member) 2005-2009 Clinical Ethics Forum, Trillium Health Centre, Mississauga (Chair) 2001-03 Clinical Ethics Committee, Centre for Addiction and Mental Health, Toronto (Member) 15 University 2004-present Strategic Forum; Advisory Committee (2004-2006), University of Toronto Joint Centre for Bioethics (Member) 2006-2012 MHSc in Bioethics Program Committee, University of Toronto Joint Centre for Bioethics (Member) 2008-2012 Professionalization Working Group, CORE Network, University of Toronto Joint Centre for Bioethics (Member) 2010-2012 Ethics, Integration and Transitional Care Working Group, Strategic Forum, University of Toronto Joint Centre for Bioethics (Member) 2004-2011 Clinical, Organizational and Research Ethics (CORE) Network (formerly the Clinical Ethics Group), University of Toronto Joint Centre for Bioethics (Member) 2010-2011 Consultation Documentation Guidelines Taskforce, CORE Network, University of Toronto Joint Centre for Bioethics (Co-Chair) 2009-2010 Pandemic Flu Supplementary Triage Criteria Taskforce, University of Toronto Joint Centre for Bioethics (Co-Project lead) 2008-2010 Accreditation Working Group, CORE Network, University of Toronto Joint Centre for Bioethics (Member) 2004-2006 Advisory Committee (2004-2006), University of Toronto Joint Centre for Bioethics (Member) Municipal 2012-present Ossington Community Association (OCA), Toronto (President – 2014-2017) 2016-2017 West Queen West Heritage Conservation District Study Working Group, City of Toronto (Ward 19 representative) 2012 Ossington Area Visioning Group - Chair, Councilor Mike Layton, City of Toronto (Invited representative) Board 2006-2016 Vice-Chair (2010-2016) and Member (2006-2016), Regeneration Housing and Support Services, Toronto, Ontario Providing affordable supportive housing and case management services for adults with serious mental health and/or addiction issues. 1999-2004 Member, Justice for Children and Youth A legal aid clinic providing select legal representation to low-income children and youth in Toronto and vicinity, while also providing summary legal advice, information and assistance to individuals and groups across Ontario. 16