GPA Partnership Brochure.pdf -

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Global Psoriasis Atlas Industry Partnership Programme The Global Psoriasis Atlas (GPA) will be the leading epidemiological resource on psoriasis globally; thus informing research, policy and healthcare provision for the disease worldwide. www.globalpsoriasisatlas.com @PsoriasisAtlas The Collaborating About the GPA Organisations The GPA is a long-term The University of Manchester, in We have conducted the largest International Federation of International League of International Psoriasis project that seeks to drive partnership with the University systematic review to date that of Hamburg and other research examines global data on the Psoriasis Associations (IFPA) Dermatological Societies Council (IPC) continuous improvement in the organisations, will derive estimates of the epidemiology of psoriasis. This could (ILDS) IFPA is a non-profit organisation comprising Founded in 2004, the International Psoriasis understanding of psoriasis and global epidemiology of psoriasis (Phase not have been accomplished without psoriasis associations from around the Council (IPC) is a dermatology-led, 1) and determine core criteria for the ILDS is a non-governmental organisation to uncover how it affects both the support of our industry partners. world. IFPA unites psoriasis associations voluntary, global, non-profit organization conduct of future studies on psoriasis that brings together over 170 member the individual and society. (Phase 2) that can be used in subsequent so that their global campaign for improved societies from more than 80 countries. with a network of more than 100 psoriasis Whilst the first edition of the Our work, so far, has provided us with medical care, greater public understanding experts, thought leaders, and professionals, research and to update the GPA. and increased research will improve the It was formed to: dedicated to improving patient care around GPA will focus on the prevalence robust data on 17% of countries. We Despite the contribution of existing have also conducted psoriasis healthcare lives of people who live with psoriasis and the globe. of psoriasis, future editions will • Stimulate the cooperation of societies of published epidemiological studies to surveys in 10 Latin American countries and psoriatic arthritis. dermatology and societies interested in all Our vision is a world free of psoriasis. We be expanded to include access the understanding of the occurrence of have plans to do the same in Africa, Asia To learn more about IFPA please visit fields of cutaneous medicine and biology believe that psoriasis patients, no matter to treatment, comorbidities psoriasis, further international research and Australia. throughout the world www.ifpa-pso.org where they live in the world, no matter how is required to better define the global and cost to society. burden of the disease. For this reason, • Encourage the worldwide advancement complex their symptoms, should have Our challenge now is to obtain the access to the best care available to them, under the remit of the Grand Challenges of dermatological education, care and The GPA is a collaboration between three data for the missing 83% of countries and that ultimately a world without psoriasis in Global Skin Health, the International sciences leading international organisations in world and, in parallel, to understand the is possible. League of Dermatological Societies (ILDS), dermatology: International Federation of access to care and treatment options • Promote personal and professional the International Federation of Psoriasis The ILDS facilitates the Our mission is to improve the care of people Psoriasis Associations (IFPA); International Associations (IFPA) and the International for people with psoriasis globally. relations among the dermatologists of financial and contractual with psoriasis worldwide through education, League of Dermatological Societies (ILDS); Psoriasis Council (IPC) have established an the world governance of the GPA. research and advocacy. and International Psoriasis Council (IPC). international research programme. • Represent dermatology in commissions To learn more about IPC please visit and international health organisations www.psoriasiscouncil.org • Organise a World Congress of Dermatology every four years To learn more about ILDS please visit The Global Psoriasis Atlas has been supported by grants and sponsorships from the LEO Foundation, www.ilds.org Abbvie, Amgen, Eli Lilly UK and Company Limited, Janssen and Novartis Pharma AG (2019-2020). Lead supporter Other supporters As a team we are committed to Structure and Succeeding pursuing the goal of the atlas, which is to Why Support the ensure that people with psoriasis have access to the best available care wherever they live Global Psoriasis Atlas? • You will be supporting the collection of Governance Together in the world. data on the global burden of psoriasis. Rebekah Swan, • You will be contributing to improving Programme Manager knowledge of access to care and treatment for psoriasis patients globally. • You will be helping us to achieve our aim Partnership is a crucial step towards We know that we cannot achieve of ensuring that patients receive the best achieving the ambition of the GPA, to this alone! We recognise the available care wherever they live. ensure that people around the world importance of collaborating with have access to the best available care industry and the pivotal role they and treatment for their psoriasis. have played in our success thus far. Becoming a Partner Communications • You will be recognised as an official We recognise that innovative We have already demonstrated, during and Marketing supporter and will be named on all GPA and strategic partnerships with the first three years of this project, publications. organisations are key to delivering that we are able to bring influential our milestones and achieving the stakeholders from around the world, • You will be able to attend invitation only aims of the Atlas. together. Consequently our network is GPA meetings, with an opportunity to Board of Steering Executive growing at a pace. meet the GPA Director and members of In 2014, Member States of the the GPA team. Governors Committee Committee World Health Organisation (WHO) Our plans are ambitious but we • You will Increase your visibility among the recognised psoriasis as a serious are confident that we can achieve psoriasis healthcare community. non-communicable disease (NCD) in them in partnership with you and the World Health Assembly resolution would like to invite you to be a part • You can work with us on joint press Research WHA67.9. The resolution highlighted of this journey. releases and media outreach on relevant that many people in the world suffer dates, projects and events. Work Streams needlessly from psoriasis due to Establishing a high quality GPA requires • We will highlight your commitment to the incorrect or delayed diagnosis, social the support of industry, organisations GPA on our newsletters, annual reports, stigmatization, inadequate treatment with relevant datasets and collaboration and website and through our social media International options and insufficient access to across regions and countries. We outlets. Collaborators care. The resolution requested that encourage all current and prospective WHO publish a global report on partners to support the GPA in the next • You will receive regular updates on our psoriasis, including global incidence and phase of its development. initiatives, projects and progress. prevalence, emphasizing the need for • New supporters will be recognised further research. with a thank you post on all GPA social media accounts. Please find details in our GPA Partnership Programme Benefits Scheme overleaf. Support Packages GPA Partnership GLOBAL REGIONAL NATIONAL Programme SUPPORTER £100.000 and above SUPPORTER £51,000-99,000 SUPPORTER up to £50,000 Delivery of the GPA requires We are keen to collaborate in innovative We are grateful to Janssen, UK who ongoing support from our and unique ways. Working with us could supported us with our work in Tanzania. The GPA Director, Programme Manager and Work Stream Leads can visit your organisation provide your organisation with the ideal Through their CSR programme a member industry partners. vehicle to realise your corporate social of their staff travelled with us to provide annually to present on progress. This scheme is designed to outline responsibility (CSR) agenda. assistance with the survey, logistics, photography, social media and digital Invitation for up to four members of your organisation to meet with the GPA Director and other the benefits associated with different We recently took a small team to the levels of financial support. This will communications. key members of the team for an update on the project and to share ideas. International Foundation for Dermatology enable you to select the appropriate (IFD) Regional Dermatology Training We intend to conduct further research level of support for your organisation. Receive an open invitation for members of your organisation to attend our funders briefing Centre in Moshi, Tanzania. The purpose of of this kind in other low and middle There is also the opportunity to commit held at the EADV and the AAD. the expedition was to work with staff and income countries where data on the to repeat annual funding. dermatology specialists from across the epidemiology of psoriasis are sparse. We Work with us on joint press releases and media outreach on relevant dates for projects or events. Sub-Saharan region to conduct a workshop would be delighted to collaborate with your and two pilot field surveys and to learn organisation on future projects. Receive regular updates on our initiatives, projects and progress. more about access to psoriasis healthcare in Tanzania. Receive recognition on our newsletters, annual reports and publications. Logo recognition and corporate link present on the GPA website. New supporters will be recognised with a “thank you” post on all GPA social media platforms. Strategic Level Partnership With The GPA This level of partnership requires a commitment to repeat annual funding for between 3 and 5 years and would include opportunities for partnership working on our field trips. We invite organisations interested in supporting the Global Psoriasis Atlas to contact Rebekah Swan, GPA Programme Manager, for more information at rebekah.swan@manchester.ac.uk Tanzania, July 2019 Dr Kathryn Hampton, Janssen, skin health promotion in Maasai Land The GPA and the World Health Organization The GPA team with Professor John Masenga, Dr Daudi Mavura and local dermatology specialists outside the RDTC In 2014, Member States recognized psoriasis as a serious non-communicable disease (NCD) in the World Health Professor Griffiths with local dermatology specialist and Maasai translator Assembly resolution WHA67.9 The resolution highlighted that many people in the world suffer needlessly from psoriasis due to incorrect or delayed diagnosis, social stigmatization, inadequate treatment options and insufficient access to care. The resolution requested that GPA workshop at RDTC WHO publish a global report on psoriasis, including the global incidence and prevalence, emphasizing the need for further research on psoriasis. Professor Griffiths, Rebekah Swan and the research team Professor Griffiths, Professor Ncoza Dlova and Dr Daudi Mavura with some of the Maasai elders, women and children reviewing psoriasis patients at the RDTC www.globalpsoriasisatlas.com @PsoriasisAtlas October 2019 | DW.3611.10.20